Information for parents of disabled children
Showing posts with label Disabled. Show all posts
Showing posts with label Disabled. Show all posts

Wednesday, January 5, 2011

Advocacy in today's school system

There's a burning need for advocacy in special needs education today. Areva Martin's book The Everyday Advocate highlights that need. Parents, overburdened emotionally and financially, are having to metaphorically take up arms in order to make the system run as it should for children.

One can't assume anymore that teachers and administrators are advocates for your child. The truth is they are employees of the system, and that system has cost management needs. Teachers go out into the work place with massive debts and a burning desire to teach. There is always a risk when they go out on a limb to recommend services in today's cost cutting environment. If you buck the admin too many times, you will certainly feel the sting.

Therefore, it's left to a parent to obtain an advocate or become one. The amount of time it takes to properly advocate for children is amazing. There are files to compile, phone calls to be made, negotiations to manage and research to be done. Parents must add this pile of tasks to an already growing stack of tasks they manage each day, and that's if everything manages to run smoothly. If it doesn't, one must prepare for mediation or due process.

School is not a cure. It's a minimizer. It minimizes the damage done to a child's mind by training that mind like an athlete trains their body.  It will play a crucial role in the coming years in educating parents to minimize at home. No doctor can have the kind of relationship with parents that schools have. Until we start taking our school's role in special needs treatment seriously and fund the programs, enforce the policies and train the staff, I'm afraid we will see an unorganized, failing system for years to come.
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Thursday, October 14, 2010

Transition Fair at Rise Learning Center.

This event is a great resource for all parents, but a must for those of us approaching the teenage years. It's run by a dear friend, Joni Atkinson. She's been doing this for 23 years and taught me almost everything I know about transition. Her Facebook explains:
The transition fair has a variety of different booths for parents of students both young and old to gather vital information for their student to be successful when transitioning out of school. There are people from Vocational Rehab, BDDS, SSI, Medicaid, Stress Centers, Supported living, Supported employment and the list goes on and on. This information is so vital to get out to all parents of students with special needs. Anyone that you know that could benefit from additional services should partake in this event. Everyone has a chance to meet people and develop a bridge of communication. Please spread the word to let everyone know that this event can be very beneficial. We will also have a spaghetti dinner that is $5.00 for adults and $3.00 for kids. Please rsvp asap!!!!
The Fair happens Tuesday October  26th at 5 pm.
5391 shelby here in Indy.
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Monday, September 27, 2010

Fighting Frustrations; When the System Seems to Be Fighting You

Long jumpImage via WikipediaWhen working toward a negotiable goal with your child's school, it's possible to become frustrated, and irritated, and. . . you get the picture. Some resistance can become lots of resistance, and your sunny disposition goes right out the window because this is your kid we're talking about here. There are ways to break through that resistance and come out on the other side with relationships intact, as well as an acceptable IEP. It starts with you.

Know Your Stuff


Research your positions, so that you can communicate that position clearly and without snarkiness. We seldom snark when we have facts and figures to quote. Unfortunately, this means we get homework. Pull out the old IEP binder and get to work. The safest way to start, in my opinion, is to decide on your deal-breakers.  What issue will force you up and away from the table? Once those are prioritized, you'll know where to start researching.


Know Your Enemy

Let me reassure you that it's usually not an enemy, more like an obstruction. It's not a good idea to assume an administrator is not "on your side". Admins are very often worker bees in the hive. They have job descriptions and requirements. Seldom are these people your enemy, but neither are they your friend. These are professionals. Once you really grasp that, it's not a long jump to the next logical conclusion. So are you!

As a mother or father, you have the most diverse job description known to man. You are the resident expert on your child. The data you have on this particular student is invaluable to the school's staff. They need your input.

Treat this like a business meeting. Wear a suit if you have to! If you come at this from a professional frame of mind, it will help you be the advocate you need to be. If you are losing your temper, stop the meeting. Ask for a break or a reschedule. The law gives you the right to do this. 


Know Thyself

Maybe this makes me the cockeyed optimist in the room, but I really believe most parents can do this on their own. It takes time and work and gumption. It's hard, still is it really harder than what we do already? Any one of us can do this


Degrees and doctorates are not required to get a diagnosis in the family. All it takes is breathing to get that news. Most diseases and disorders are no respecters of persons. As a parent, our limitations are what we say they are. How often do we tell our child with special needs 'they can do it'? Take a moment to look in the mirror and say it to yourself. After all, you've gotten this far, right?
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