Vaccines and The Crisis of Faith

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The blog quoted below Age of Autism contains some objectionable content akin to hate speech. I do feel however that the information quoted by them here has validity and can be looked at objectively by a reader.

AUTISM AND VACCINES AROUND THE WORLD: Vaccine Schedules, Autism Rates, and Under 5 Mortality View the entire study HERE. Generation Rescue, Inc. April 2009 The United States has the highest number of mandated vaccines for children under 5 in the world (36, double the Western world average of 18), the highest autism rate in the world (1 in 150 children, 10 times or more the rate of some other Western countries), but only places 34th in the world for its children under 5 mortality rate. What's going on?

via www.ageofautism.com

Our family took a pass on H1N1 this year. It wasn't entirely paranoia that drove our decision, though I admit to being a vaccine skeptic who investigates each shot like I'm interviewing childcare providers. I work in the school my son attends and knew we'd probably already been exposed, so the urgency wasn't there. I was right by the way.  I'm not anti-vaccine, but every parent should do a risk assessment. Will the potential benefit to my child outweigh the risk?

However, from pregnancy, I've wondered at the logic involved in mercury use. I remember getting the pamphlet to avoid fish because of mercury content and thinking, "But it's okay to put in shots?" When I found out that thimerosal was no longer a necessary ingredient, my decision was made. Why do it if you don't have to?  Problem solved.



Now, we decide these things based entirely on our family history and vaccine contra-indications. We also have a family member in the reserve military, and that opens a whole other can of worms with Uncle Sam. Seizure disorder is the primary issue facing us. For instance, Pertussis has a manufacturer's warning against use when the patient has a first-degree relative with seizure disorder - brother, mother, sister, father. Bundling of vaccines makes smart vaccination almost impossible for us. Just try getting the D and the T, without the P. Insurance won't pay for it, and our doctor couldn't order it because of the loss she'd incur. It only comes in bulk. Can't blame her there. We even hit a wall at the local health department.



My point is that everything should be considered logically. There is no either/or on the subject of vaccines, only when/if. But why stigmatize parents who choose to vaccinate intelligently by spreading out a child's vaccine schedule or act on the advice of the makers of the vaccine? See articles below.  My answer is that we've become arrogant in our ability to overcome death and disease. We've decided as a society that we finally know it all, and, well, if we happen to be wrong in a case or two, that's the minority. It's the only explanation I can find for such a rigid mandate that vaccine is sacrosanct.


They (born again vaccinaters) don't seem to understand that the one in a hundred who goes against medical logic and have an injured child thereafter, they don't really worry about the other ninety-nine. Their child is the only one who matters at that moment. This makes vaccine a personal decision, just as much as surgery or antibiotics would be between a family and a doctor. Of course, you can argue that it affects anyone who could become exposed by your family. That's partially true which is why parents should be encouraged to do a risk assessment. Vaccinating when the danger from disease is great and personal risk is low isn't a hardship. Our case illustrates this point.


Did we get MMR? Yes, but when we felt ready and without mercury additives. Did we get pertussis? Not just no, but . . .
Seizures are a very real risk that we see clearly now from watching what they do to our son and knowing our other children are also at risk. 

Here's the thing. Our children look to us to act as their eyes and ears until such time as they can do it for themselves. When looking all the information over, we decided that no one needs a hep shot on their first day on the planet. We decided that seizures are bad, and if Pfizer says it's a bad idea, it probably is. Last but not least, I decided that these were my kids, and I'm going to protect them as much as I can. That may disturb a few people and concern the CDC, but they can do what they want with their own children. My family has a different way of doing things.

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• H1N1, Vaccines, and Mercury (blisstree.com)
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• What's the Real Story on the Vaccine Debate? Learn More (wired.com)
• Jack's Fourth Show: How anti-vaccine groups rebrand themselves as legitimate autism charities (scienceblogs.com)
• The anti-vaccine movement shows just how low it can go (scienceblogs.com)
• Show me the science (blisstree.com)

The Art of Creative Thinking

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Behavior strategies can be creative. There's no law against it. In fact, some professionals even encourage creativity with behavior issues. I thought I'd take a minute to blog about some strategies that I've seen work.

Making a team- Several kids I know need serious help during a meltdown. A meltdown, which any veteran survivor of special education can tell you, is the moment after the moment when a kid has had way too much. You can write a team approach into your behavior intervention plan. Who works with your child best? A teacher? A coach? You simply write up a game plan for dealing with a meltdown and those are the people you put in the game.  The goal is always the same; Get the student passed the meltdown and calm, then you move on to the business of his day.

One-on-One- Schools don't want to do it because they just can't afford it too often, but it does work. One aide to manage one student is sometimes called for when interventions will be intensive and of long duration.  This is likely something a parent has to put on the table. Don't wait for a teacher or administrator to put it out there. You could be waiting a while.

Give Sign a Try- I know all the arguments. It's not widely used. Others won't know how to talk to them. Okay, I get it, but communication is the biggest stumbling block there is for a child with Autism especially. I have two responses to the argument drawn from my own experience and philosophy. First, my experience is that it really reaches kids who work better tactilely or visually. Second, my philosophy is that people need to stop being lazy in our society. If you are in a social situation with a sign speaker, then get off your bum and learn some! Could I have put that more diplomatically? Yeah, but what fun is that?

These are by no stretch of the imagination the only creative interventions you can use. These are examples only. Parents drive the case conference committee, and while some educators disagree with me that it should be that way, it's the way it is. Think about it. Every other person at that table has multiple other students to work with this year. Yours isn't the only one. You are the only member of that committee who is exclusively focused on your child. A teacher doesn't live with the result of that committee's hard work. The family does.

There's Tired, and Then There's Thanksgiving Tired

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The flu took it's toll this week, and the week before that. Its probably reason number 1 that I feel this tired today. Isn't it?

Then again, I've felt this coming on for a while. There are triggers for everyone as they run through life. Sometimes the world just goes gray. Thanksgiving does that to me for some reason. It's secretly my most hated holiday. Think about it.

An entire day dedicated to the celebration of how thankful we should be. It makes me regress yearly to my angry stage of grief. Well, I suppose I'm thankful that D has something that won't kill him. That's something, I guess. If you ignore that he can't talk to us and that he's not going to marry, go to college or even play little league, we have much to be grateful for.

The upside is that Thanksgiving demands that I work my behind off in the kitchen, in the house, keeping the peace. It's like a holiday marathon that begins days before and lasts into Thanksgiving night as I wind down from a good cry on the bathroom floor.  I only think about it if I stop.

Most Restrictive Environments

Every one knows the phrase, but so very many educators don't understand. My son attends RISE Learning Center in Indianapolis. It's considered one of these environments. However, let me tell you why it's least restrictive for him.

Darrel couldn't be given the time and attention in a gen ed setting or even a simple special ed. classroom to learn simple things like walking in the line or not hitting others to get attention. His understanding and his behavior would cause him to be ostracized socially and under-educated in a less restrictive environment.

D can't sit down for very long, and it's not just behavior. He CAN'T sit down for long periods of time. It is painful, uncomfortable, distressing. Regular academic environments have the restriction that you must. It must be done this way, and that makes them too restrictive for Darrel. This is the reason a more restrictive environment belongs on the continuum of services for special education students.

It shocks me everyday to meet professionals in education who are against these environments touting inclusion, inclusion, inclusion like it's the magic cure. We have numbers that inclusion has good side effects, but my question is; Has anyone actually looked at its effects in terms of effectiveness compared with intensive, comprehensive service environments like RLC? I doubt it. The severe end of the autism spectrum interferes with our preconceived notions. My hope is to see education truly individualized as we profess to want it. Inclusion isn't right for every child, or it may not be right for right now. With intensive work on behavior and symptoms of the spectrum, a child who would never be included like Darrel or who would never learn if included, might have a hope of inclusion in the future.

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• Studies Show Autism More Common Than Previously Thought [Broad Spectrum] (jezebel.com)
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Taking a short hiatus to deal with the holidays. Hope everyone has a wonderful time. Keep checking our links to see any new information that may come up. Any questions on this website can be addressed to rlc_mommy@comcast.net